Published: Thu, June 21, 2018
Medicine | By Tracy Klein

Black Stars Who Suffer From Sickle Cell Anemia

Black Stars Who Suffer From Sickle Cell Anemia

In a webinar today, "Global Action: Improving Health Outcomes for Sickle Cell Disease", ASH convened global health experts, media, and its Sickle Cell Disease Coalition partners to address the urgent need to raise global awareness about this devastating disease.

He spoke on the sidelines of the annual public lecture on Sickle Cell Disorder.

As we commemorate this World Sickle Cell day, let us show some compassion to people living with sickle cell. These sickle shaped cells do not last more than 20 days.

Sickle cell disease is caused by a faulty gene that affects how red blood cells develop.

Sickle Cell Disease, ie homozygous sickle cell and micro-deficiency anemia (combination with Mediterranean anemia) is hereditary hemoglobinopathy.

Sickle cell disease has been a well-established risk factor for stroke. For more information on how you can get the tag or find resources through the Sickle Cell Foundation, check out the website here.

In a recent study conducted by the Uganda Sickle Cell Rescue Foundation and researchers from Clarke International University, 68.7 per cent of people interviewed said they can not marry a person with sickle cell disease.

"This plan should entails early diagnosis with newborn screening, while the main target should be the mothers who are AS genotype carrier". Sickle Cell disease is not contagious.

Enam Bankas has revealed that over 15, 000 babies are born with sickle cell disease yearly in Ghana.

"There is no better time to create awareness than as they are growing up they are also advancing in knowledge".

She advised: "Sickle Cell disease can be avoided".

Who are the key vendors in the global Sickle Cell Disease Drug market?

"It helps to reduce the level of hospitalisation, reduces few blood transfusion cases and help reduce mortality which is high by 50 per cent". This stigma is also fueled by labeling people with sickle cell as "sicklers". As parents, it's our responsibility to request a sickle cell test when our babies have been born.

Iwalokun, however, urged government to support the establishment of sickle cell centre in every state across the country where such drug could be administered and regulated.

These videos, made possible by a grant from Novartis Pharmaceuticals, can be found and shared at http://scdcoalition.org/global."One of the greatest hurdles we face in curbing the heartbreaking rate of mortality caused by sickle cell disease in sub-Saharan Africa is lack of awareness of the condition and the simple, relatively low-priced interventions that can save lives".

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